Act communicable Notifiable Diseases Management System (ndms)



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ACT Communicable Notifiable Diseases Management System (NDMS)

ACT Health

Background


Under the Public Health Act 1997, laboratories, hospitals, medical practitioners in the ACT must notify ACT Health of diagnoses of certain infectious diseases and conditions. These notifications are compiled into the Notifiable Diseases Management System which is held by the Communicable Disease Control Section at the Health Protection Service.
For a condition to be notified, a patient must seek medical help, be diagnosed with the condition, have the appropriate laboratory tests, and then the diagnosis must be reported to ACT Health.

Data Requests


Any requests for notifiable diseases data in the ACT must comply with the requirements of the data ACT Health Data Release Policy 2007. Please note that the release of notifiable diseases data is subject to data custodian approval, ethics approval (where required) and possibly other data caveats (eg. limitations on the publication of small data sets).

Tips for using NDMS data in linkage studies


  • Data from 1/1/2000 has been incorporated into the Master Linkage Key, therefore studies wishing to use NDMS data may request data from then onwards.

  • Notifiable diseases are generally under-reported in the NDMS – this should be taken into consideration when reporting results of studies using these data.



Data Custodian


Chief Health Officer

Dr Paul Kelly

Population Health Division

ACT Health


Data contact person


Rebecca Hundy

Manager, Disease Surveillance

Communicable Disease Control Section

Health Protection Service

ACT Health

Ph. (02) 6205 2052

Fax (02) 6205 1739

Em Rebecca.Hundy@act.gov.au




ACT Communicable NDMS Variable information




Variable

Description/Notes

Data quality and completeness

Disease Name

Conditions that are notifiable in the ACT are listed here http://www.health.act.gov.au/sites/default/files/Reporting_of_notifiable_conditions_code_of_practice_and_form_0.pdf


Required field - High accuracy and reliability, 100% complete

Type name

Linked to disease name, relevant for some diseases and not others for example, Salmonella subtypes such as typhimurium, virchow, enteritidis ; Legionella subtypes such as pneumophila, longbeachae.

Where information is known, data highly accurate and reliable.

Age

Age at onset, in years

Required field, database generated from recorded date and date of birth, 100% complete

DOB

dd-mm-yyyy

Required field - High accuracy and reliability, 100% complete.

Sex

1 = Male

2 = Female

3 = Indeterminate

9 = Unknown


Required field – High accuracy and reliability, 100% complete.

Indigenous Status

1 = Indigenous – Aboriginal but not Torres Strait Islander

2 =Indigenous – Torres Strait Islander but not aboriginal

3 = Indigenous – Aboriginal and Torres Strait Islander

4 = Not Aboriginal

9 = Not Stated

Data are only known for diseases where follow-up occurs*.


Diagnosis method

Unknown

Other

Histopathology

Antigen Detection

Epi-linked

Microscopy

Nucleic acid testing

Culture

Clinical

Serology

High accuracy and reliability,100% complete.

Recorded date

Date notification recorded on NDMS (auto-completed)

Required field - Database generated as day of entry, high accuracy and reliability.

Specimen date

Date of specimen collection

Required field – high accuracy and reliability.

Hospitalised

Yes/No

Defaults to no



Data are only accurately known for diseases where follow-up occurs*.

* There are different follow-up and investigation practices for each of the notifiable conditions, and these practices have varied over past years. This subsequently has an effect on data quality and completeness. Similarly, the formatting of selected field variables has also changed over time. Applicants should request further information regarding specific disease follow-up practices and data quality prior to submitting a data release request. The information provided above should only be taken as a very rough indication of data completeness and quality.

Notifiable Diseases Management System - ACT





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